Spanish Fededated EGA Node¶
The Federated European Genome-phenome Archive (FEGA) is a distributed network for sharing and exchange of sensitive human -omics data consented for research but not for fully public dissemination. The european network permits keeping sensitive datasets archived within national borders in agreement with the applicable General Data Protection Regulation (GDPR). While archive nodes are distributed Europe, the corresponding metadata is centrally made available for data discovery through the main European Genome-phenome Archive portal (central EGA).
The Spanish FEGA (es-FEGA) is a national service for storing sensitive biomedical data in Spain free of charge for academic users. Supported by the Spanish Institute of Bioinformatics (INB) in collaboration with the EGA at the Centre for Genomic Regulation (EGA-CRG), sensitive research datasets are primarly hosted at the Barcelona Supercomputing Center facilities under dataset-specific controlled access policies. At the same time, the public information is available for international discovery through the central EGA. Each data collection is associated to a Data Access Committee (DAC), who defines its access policies and evaluates external access requests, either granting or denying the dataset distribution for re-use.
INB and EGA-CRG are currently developing the Spanish FEGA pilot service, to be released as an stable and permanent service for researchers proximately.
In the central EGA, you can discover interesting genome and phenome datasets from all over Europe and get granted access rights to them.
The Spanish FEGA node offers means for ingesting new dataset submissions mean to be archived in Spain.
The following sections cover the details of the different procedures covered by the life-cycle of sensitive data being archived in the network.
- Data Submission
- Data request
- Data Access
- Useful Links